https://ogma.newcastle.edu.au/vital/access/ /manager/Index en-au 5 Do haematological cancer patients get the information they need about their cancer and its treatment? Results of a cross-sectional survey https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:36854 Wed 24 Nov 2021 15:53:10 AEDT ]]> Demographic, clinical, psychosocial, and environmental correlates of objectively assessed physical activity among breast cancer survivors https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:25371 Wed 24 Nov 2021 15:50:36 AEDT ]]> Psychometric testing of the Mandarin version of the 34-item Short-Form Supportive Care Needs Survey in patients with cancer in mainland China https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:34619 Wed 23 Feb 2022 16:04:35 AEDT ]]> Follow-up cancer care: perspectives of Aboriginal and Torres Strait Islander cancer survivors https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:31511 Wed 15 Dec 2021 16:09:40 AEDT ]]> Exploring advance care planning awareness, experiences, and preferences of people with cancer and support people: an Australian online cross-sectional study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:47088 Wed 14 Dec 2022 09:30:23 AEDT ]]> Improving national hospice/palliative care service symptom outcomes systematically through point-of-care data collection, structured feedback and benchmarking https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:28132 Wed 11 Apr 2018 17:17:40 AEST ]]> On-line information and support for supporters and carers of haematological cancer patients: is access an issue? https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:14386 Wed 11 Apr 2018 15:41:25 AEST ]]> Is my patient suffering clinically significant emotional distress?: demonstration of a probabilities approach to evaluating algorithms for screening for distress https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:7226 Wed 11 Apr 2018 15:36:26 AEST ]]> Cancer patients' willingness to answer survey questions about life expectancy https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:14301 Wed 11 Apr 2018 12:34:58 AEST ]]> Interventions for preparing patients for chemotherapy and radiotherapy: a systematic review https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:14646 Wed 11 Apr 2018 12:18:26 AEST ]]> Young adult cancer survivors' psychosocial well-being: a cross-sectional study assessing quality of life, unmet needs, and health behaviors https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:13565 Wed 11 Apr 2018 12:09:28 AEST ]]> Patient-centred care: making cancer treatment centres accountable https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:14195 Wed 11 Apr 2018 11:36:28 AEST ]]> Risk factors for current and future unmet supportive care needs of people with pancreatic cancer. A longitudinal study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:29841 n = 116) then follow-up surveys 2 (n = 82) and 4 months (n = 50) later. The validated survey measured 34 needs across five domains. Weighted generalised estimating equations were used to identify factors associated with having ≥1 current or future moderate-to-high unmet need. Results: The overall proportion of patients reporting ≥1 moderate-or-high-level need did not significantly change over time (baseline = 70 % to 4 months = 75 %), although there was a non-significant reduction in needs for patients who had a complete resection (71 to 63 %) and an increase in patients with locally advanced (73 to 85 %) or metastatic (66 to 88 %) disease. Higher levels of pain (OR 6.1, CI 2.4–15.3), anxiety (OR 3.3, CI 1.5–7.3) and depression (OR 3.2, CI 1.7–6.0) were significantly associated with current needs. People with pain (OR 4.9, CI 1.5–15.4), metastatic disease (OR 2.7, CI 0.7–10.0) or anxiety (OR 2.5, CI 0.7–8.6) had substantially higher odds of reporting needs at their next survey. The prevalence of needs was highest in the physical/daily living and psychological domains (both 53 % at baseline). Pain and anxiety had respectively the strongest associations with these domains. Conclusions: Careful and continued attention to pain control and psychological morbidity is paramount in addressing significant unmet needs, particularly for people with metastatic disease. Research on how best to coordinate this is crucial.]]> Wed 11 Apr 2018 10:08:14 AEST ]]> How does the distress thermometer compare to the Hospital Anxiety and Depression Scale for detecting possible cases of psychological morbidity among cancer survivors? https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:13568 Wed 11 Apr 2018 10:06:27 AEST ]]> Building psychosocial capacity through training of front-line health professionals to provide brief therapy: lessons learned from the PROMPT study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:33200 Wed 10 Nov 2021 15:13:51 AEDT ]]> The system for patient assessment of cancer experiences (SPACE): a cross-sectional study examining feasibility and acceptability https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:37172 Wed 07 Apr 2021 20:21:32 AEST ]]> Validating self-report and proxy reports of the Dexamethasone Symptom Questionnaire -chronic for the evaluation of longer-term corticosteroid toxicity https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:24597 Wed 06 Apr 2022 14:05:14 AEST ]]> Which items on the distress thermometer problem list are the most distressing? https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:25870 Wed 06 Apr 2022 14:03:12 AEST ]]> A qualitative study investigating Australian cancer service outpatients’ experience of distress screening and management: what is the personal relevance, acceptability and improvement opportunities from patient perspectives? https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:47065 Tue 30 Apr 2024 09:57:14 AEST ]]> Assessing patients' experiences of cancer care across the treatment pathway: a mapping review of recent psychosocial cancer care publications https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:36524 Tue 26 May 2020 14:30:48 AEST ]]> The timeliness of patients reporting the side effects of chemotherapy. https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:36845 Tue 18 Aug 2020 09:14:52 AEST ]]> What are the sources of distress in a range of cancer caregivers?: a qualitative study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:46180 n = 14) were aged from 25 to 80 years, including two bereaved caregivers. The relationships of the caregivers to the patients were as follows: partner (n = 8), parent (n = 1), child (n = 3), sibling (n = 1), and friend (n = 1). Six major themes emerged in relation to sources of distress: (1) a lack of sufficient and timely information; (2) uncertainty; (3) the role and duties of caregiving; (4) lack of family-centred services; (5) practical challenges; and (6) impact of distress. Conclusion: Caregivers face a number of specific challenges beyond those experienced by patients. It is essential to ensure that caregivers are actively well-informed and well-supported alongside the person who is diagnosed with cancer.]]> Tue 15 Nov 2022 08:33:39 AEDT ]]> The dynamic relationship between cancer and employment-related financial toxicity: an in-depth qualitative study of 21 Australian cancer survivor experiences and preferences for support https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:54782 Tue 12 Mar 2024 11:11:14 AEDT ]]> Barriers to lung cancer care: health professionals' perspectives https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:33279 Tue 03 Sep 2019 18:27:24 AEST ]]> A discrete choice experiment to assess cancer patients' preferences for when and how to make treatment decisions https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:34902 Tue 03 Sep 2019 17:58:13 AEST ]]> A tiered multidisciplinary approach to the psychosocial care of adult cancer patients integrated into routine care: the PROMPT study (a cluster-randomised controlled trial) https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:33201 Thu 28 Oct 2021 13:03:01 AEDT ]]> A pilot, multisite, randomized controlled trial of a self-directed coping skills training intervention for couples facing prostate cancer: accrual, retention, and data collection issues https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:23099 Thu 28 Oct 2021 12:36:55 AEDT ]]> A national study of the unmet needs of support persons of haematological cancer survivors in rural and urban areas of Australia https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:36828 Thu 28 Oct 2021 12:35:51 AEDT ]]> The impact of cancer diagnosis and treatment on employment, income, treatment decisions and financial assistance and their relationship to socioeconomic and disease factors https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:25829 Thu 24 Mar 2022 11:31:19 AEDT ]]> Head and neck cancer patient experience of a new dietitian-delivered health behaviour intervention: 'you know you have to eat to survive' https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:35773 Thu 21 Nov 2019 12:56:59 AEDT ]]> Examining variation across treatment clinics in cancer patients' psychological outcomes: results of a cross sectional survey https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:44675 Thu 20 Oct 2022 08:35:33 AEDT ]]> Experiences of colorectal cancer patients in the 2-years post-diagnosis and patient factors predicting poor outcome https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:27926 Thu 09 Dec 2021 11:02:56 AEDT ]]> Aromatase inhibitor induced musculoskeletal syndrome: a significant problem with limited treatment options https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:23244 Thu 04 Nov 2021 10:39:09 AEDT ]]> Reproductive outcomes following a stem cell transplant for a haematological malignancy in female cancer survivors: a systematic review and meta-analysis https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:41465 n = 438). There were 25% (n = 240) of women who became pregnant after autologous HSCT compared with 22% (n = 198) who subsequently became pregnant following allogeneic HSCT. Conclusions: This meta-analysis reflects low pregnancy rates for cancer survivors desiring a family. However, live births are improving over time with new technology and novel therapies. Hence, female cancer patients should be offered timely discussions, counselling and education around fertility preservation options prior to starting treatment with gonadotoxic therapy.]]> Thu 04 Aug 2022 11:26:32 AEST ]]> The unfulfilled promise: a systematic review of interventions to reduce the unmet supportive care needs of cancer patients https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:14298 Thu 01 Aug 2019 17:20:02 AEST ]]> Development of a cancer needs questionnaire for parents and carers of adolescents and young adults with cancer https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:14002 Sat 24 Mar 2018 10:38:26 AEDT ]]> Psychological distress in cancer patients undergoing radiation therapy treatment https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:13541 Sat 24 Mar 2018 10:34:51 AEDT ]]> Complementary and alternative medicine (CAM) use among elderly Australian women who have cancer https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:2546 Sat 24 Mar 2018 08:31:04 AEDT ]]> Development and pilot testing of a communication aid to assist clinicians to communicate with women diagnosed with ductal carcinoma in situ (DCIS) https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:14707 Sat 24 Mar 2018 08:19:06 AEDT ]]> Evidence for interventions to improve psychological outcomes in people with head and neck cancer: a systematic review of the literature https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:12472 Sat 24 Mar 2018 08:16:29 AEDT ]]> Australian palliative care providers' perceptions and experiences of the barriers and facilitators to palliative care provision https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:12326 Sat 24 Mar 2018 08:11:37 AEDT ]]> Caregiver satisfaction with out-patient oncology services: utility of the FAMCARE instrument and development of the FAMCARE-6 https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:12266 Sat 24 Mar 2018 08:10:07 AEDT ]]> Psychometric properties of cancer survivors' unmet needs survey https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:12252 Sat 24 Mar 2018 08:08:09 AEDT ]]> From inside the bubble: migrants' perceptions of communication with the cancer team https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:12251 Sat 24 Mar 2018 08:08:09 AEDT ]]> "You need something like this to give you guidelines on what to do": patients' and partners' use and perceptions of a self-directed coping skills training resource https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:19031 Sat 24 Mar 2018 08:05:26 AEDT ]]> Prevalence and predictors of anxiety and depression among family caregivers of cancer patients: a nationwide survey of patient-family caregiver dyads in Korea https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:19073 Sat 24 Mar 2018 08:05:19 AEDT ]]> Baseline depression predicts malnutrition in head and neck cancer patients undergoing radiotherapy https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:18232 Sat 24 Mar 2018 08:04:52 AEDT ]]> Correlates of resistance training in post-treatment breast cancer survivors https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:19909 Sat 24 Mar 2018 08:03:46 AEDT ]]> Functional benefits are sustained after a program of supervised resistance exercise in cancer patients with bone metastases: longitudinal results of a pilot study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:20738 Sat 24 Mar 2018 08:00:27 AEDT ]]> Walking a mile in their shoes: anxiety and depression among partners and caregivers of cancer survivors at 6 and 12 months post-diagnosis https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:17787 Sat 24 Mar 2018 07:57:24 AEDT ]]> Development and validation of the short-form survivor unmet needs survey (SF-SUNS) https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:19134 0.9). Discriminant validity illustrated the short-form SUNS' ability to discriminate between those who had recently received treatment and those who had not. Conclusions: This study describes the development and psychometric evaluation of the short-form SUNS (SF-SUNS). Future studies should confirm the test-retest reliability and predictive validity of the SF-SUNS utilising large, independent, population-based samples of cancer survivors.]]> Sat 24 Mar 2018 07:55:55 AEDT ]]> Phase III, randomized, double-blind, placebo-controlled study of modafinil for fatigue in patients treated with docetaxel-based chemotherapy https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:20599 Sat 24 Mar 2018 07:55:33 AEDT ]]> Fear of cancer recurrence in young women with a history of early-stage breast cancer: a cross-sectional study of prevalence and association with health behaviours https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:21757 Sat 24 Mar 2018 07:53:08 AEDT ]]> The development and evaluation of an oncological palliative care deprescribing guideline: the 'OncPal deprescribing guideline' https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:27289 Sat 24 Mar 2018 07:40:21 AEDT ]]> Venous access: the patient experience https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:25933 Sat 24 Mar 2018 07:27:50 AEDT ]]> Validation of Chinese and English versions of the holistic well-being scale in patients with cancer https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:28915 Sat 24 Mar 2018 07:25:58 AEDT ]]> Routine prescribing of gabapentin or pregabalin in supportive and palliative care: what are the comparative performances of the medications in a palliative care population? https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:26745 Sat 24 Mar 2018 07:24:48 AEDT ]]> Physical activity preferences in a population-based sample of kidney cancer survivors https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:22176 Sat 24 Mar 2018 07:14:59 AEDT ]]> A bridge between cultures: interpreters' perspectives of consultations with migrant oncology patients https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:23157 Sat 24 Mar 2018 07:10:35 AEDT ]]> Preferences for life expectancy discussions following diagnosis with a life-threatening illness: a discrete choice experiment https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:38299 p < 0.01). More patients preferred the two 20-min rather than the one 40-min consultation format (55% vs 45%, z = 4.284, p < 0.01). Information content did not influence choice. Age, cancer type, and patient-perceived prognosis were not associated with preferences. Conclusion: Healthcare professionals should assess cancer patients' preferences for engaging in life expectancy discussions as soon as they have this information, and ensure patients have adequate time to consider the information they receive, seek additional information and involve others if they wish.]]> Mon 29 Jan 2024 18:49:00 AEDT ]]> Factors associated with haematological cancer survivors experiencing a high level of unmet need across multiple items of supportive care: a cross-sectional survey study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:20617 Mon 23 Sep 2019 11:49:55 AEST ]]> Optimal cancer care: what essential elements of care would help haematological cancer patients obtain and understand information about their disease and its treatment and impact? https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:47565 Mon 23 Jan 2023 13:25:30 AEDT ]]> Prevalence and associates of psychological distress in haematological cancer survivors https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:24945 Mon 20 Mar 2023 13:00:11 AEDT ]]> Patterns of primary health care service use of Indigenous Australians diagnosed with cancer https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:46209 Mon 14 Nov 2022 11:43:52 AEDT ]]> A pragmatic comparative study of palliative care clinician's reports of the degree of shadowing visible on plain abdominal radiographs https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:42856 Mon 05 Sep 2022 16:01:38 AEST ]]> The new challenge for improving psychosocial cancer care: shifting to a system-based approach https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:36881 Fri 21 Oct 2022 14:53:12 AEDT ]]> Distress screening and supportive care referrals used by telephone-based health services: a systematic review https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:39725 n = 4019); fourteen were eligible for full-text review. Of the 14 studies, 13 included cancer patients. Studies were across multiple settings and identified nine distress screening tools in use. Conclusion: The reviewed studies indicate that validated distress-screening tools are being used via telephone to identify distress, particularly in relation to cancer. Screening-driven supportive care referrals are also taking place in telephone-based services. However, not all services use an established referral protocol. Ongoing rescreening of callers' distress is also limited despite it being an important recommendation from psycho-oncology guidelines.]]> Fri 17 Jun 2022 17:38:11 AEST ]]> Stakeholder perspectives on the impact of COVID-19 on oncology services: a qualitative study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:54831 Fri 15 Mar 2024 11:54:29 AEDT ]]> Brain cancer patient and support persons’ experiences of psychosocial care: a mapping of research outputs https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:49396 Fri 12 May 2023 14:34:08 AEST ]]> Can models of self-management support be adapted across cancer types? A comparison of unmet self-management needs for patients with breast or colorectal cancer https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:30002 Fri 10 Mar 2023 19:02:11 AEDT ]]> Quality versus quantity in end-of-life choices of cancer patients and support persons: a discrete choice experiment https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:32216 Fri 10 Mar 2023 17:18:40 AEDT ]]> “It sort of hit me like a baseball bat between the eyes”: a qualitative study of the psychosocial experiences of mesothelioma patients and carers https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:32863 Fri 10 Mar 2023 17:16:30 AEDT ]]> A cross-sectional audit of current practices and areas for improvement of distress screening and management in Australian cancer services: is there a will and a way to improve? https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:46949 Fri 09 Dec 2022 14:35:32 AEDT ]]> Dyadic interdependence of psychosocial outcomes among haematological cancer survivors and their support persons https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:32540 Fri 03 Dec 2021 10:32:29 AEDT ]]> Treatment of pancreatic insufficiency using pancreatic extract in patients with advanced pancreatic cancer: a pilot study (PICNIC) https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:34474 Fri 01 Apr 2022 09:29:15 AEDT ]]>